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Starting 17th year with ET. What's ahead?

Blood Cancers & Disorders | Last Active: Jan 19 4:08pm | Replies (52)

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@bshattuck138

My wife was diagnosed with ET/Jak2 in the summer of 2024. She's been on Hydrea since then. 1000mg 3 times /week and 500mg 4 days a week. No side affects at all. She's has run many marathons and completed many triathlons in her lifetime but is now retired from those competitions. However, she is still very active at the age of 72. Indoor cycling for now (we live in New England), hiking, aerobic classes and more with no dizziness at all. We'll be on our bikes cycling again as soon as the winter is over. She was biking in the fall with no issues last year. At least for her, the Hydrea has not slowed her down or affected her life at all! Yay!
Good luck to you,
Steve

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Replies to "My wife was diagnosed with ET/Jak2 in the summer of 2024. She's been on Hydrea since..."

That is reassuring. I am still waiting for my genetic testing results but hematologist very sure I have ET. The dizziness is hard to adapt to I am a bit cautious because I don’t want to fall.

Does she have Polycemia Vera or just ET. I am confused. Thank you and glad she is well.!! Mary Shinn