"Frustrated" is how lots of us feel when we develop complicated health issues.

Answers don't come easily.

You are doing everything right: Seeing a hematologist/oncologist, getting tests, and while awaiting further explanations, protecting yourself by taking HU and aspirin.

Having a blood issue you probably didn't even know was possible can make you feel really alone. In this forum, though, you're among friends. We've all been through it. We're here for you.