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DiscussionAny help for caring for husband w/Leukemia & Parkinson’s?
Caregivers | Last Active: 8 hours ago | Replies (21)Comment receiving replies
Replies to "Continuation of my journey: So…got through a second funeral in two months…a lot of adjustment to..."
Looking back on the events that have shaped your life and that of your husband, it shows the level of resilience and tenacity you posses to keep on pushing through during even the most trying of times! I bet opening up, letting your story pour out in ‘print’ feels really cathartic.
You are a natural caregiver! However I can sense this latest chapter with your husband’s cancer and bone marrow transplant is taking its toll. He may feel this isn’t any big deal but then again, he’s not being compliant with the protocol set up by his BMT team. He’s not taking meds on time and that’s creating some serious gvhd issues that may have been avoided. This, in turn, is creating turmoil for you as you try to keep him healthy. He may not want to visit with a counselor but it would be quite helpful at some point to let his team know that his isn’t taking his meds on time. You shouldn’t have to be making these adjustments for him. There are reasons for the protocol and consistency in medications, especially the anti-rejection meds is crucial to his health and ultimately yours (mentally and physically).
You’re doing an amazing job. I know being a caregiver for a BMT patient isn’t easy and your husband is making this extra hard on you. You’re a trooper, m’dear!
So keep on typing here, I think this is helpful for you!