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Post Interferon Syndrome

Infectious Diseases | Last Active: 5 days ago | Replies (540)

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@tinap66

Hi, it has been 22 years since I took the treatment for HEP C. I am grateful that I am HEP C free, but for years now I have been experiencing sever nerve pain in my legs, (where I did my injections) so much so it has altered my daily life. When the pain comes it is so bad I can not continue to walk and must sit. It wakes me up at night it is always there just times it flares up. I have thought that it was from the treatment but could never find any info on it and I asked doctors and they all say the same long term effects are unknown. Well I believe they are known and it is time for a study on just how it has effected people. I am in physical therapy now, trying to be positive but nothing has ever helped. Anyone else have these issues and if so how do you deal with it?

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Replies to "Hi, it has been 22 years since I took the treatment for HEP C. I am..."

I was treated in 2007. When I have a flare up, I can feel my injection sites. I am sorry you are going through this. I don’t have pain to your extent but I do get pain in my thighs at the injection sites.