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DiscussionDiagnosed with DIPNECH yesterday!
Neuroendocrine Tumors (NETs) | Last Active: Jan 19 2:36pm | Replies (10)Comment receiving replies
Replies to "Thank you, thank you for your response. Many similarities. Will be in contact with Huntsman Cancer..."
I’m not sure if your question was to me, but I’ll answer anyway. No, I’m not receiving any treatments at this point. I should note that my few symptoms are not very problematic at this point. Since my scans have shown no changes yet, my MSK Dr says no need. I do live within reach of other NET specialists though, so at some point I will likely try to be seen there just to confirm no treatment needed. If I had more symptoms I’d have done that already. Some people have side effects to the treatments, so I’m not wanting to add that to my plate yet. But if it was really impacting my daily life, I’d take further treatment in a heartbeat.