Is there any groups on Chronic Kidney Disease

Posted by ashleyckd3 @ashleyckd3, Nov 18, 2024

Are there any groups on Chronic Kidney Disease Stage 3

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

victoriasitko | @victoriasitko | Jan 11 8:39am

In reply to @windyshores "Yes! Are you stage 3a or 3b?" + (show)

Not sure

victoriasitko | @victoriasitko | Jan 11 8:41am

In reply to @victoriasitko "Not sure" + (show)

Not sure about stage 3a or 3b

Ginger, Volunteer Mentor | @gingerw | Jan 11 12:02pm

In reply to @victoriasitko "I have stage 3 ckd. Would like information about the proper diet, how to cope." + (show)

@victoriasitko Welcome to Mayo Clinic Connect. There are several discussions about diet here in the kidney and bladder group. If you go to the main page and put "diet" without the quote marks into the search bar, you will get a list. It will be worth your time to take a look and see what others have said.

Do you know what your eGFR number is? That will be the indicator of what stage your are in. From the National Kidney Foundation, here is a good article that explains all this: https://www.kidney.org/kidney-topics/estimated-glomerular-filtration-rate-egfr

Uncontrolled diabetes or high blood pressure are the leading causes of chronic kidney disease. Also, medication side effects, genetic factors, or lifestyle choices can play a part in kidney disease. Have you and your medical team been able to determine the underlying cause?
Ginger

cosettina | @cosettina | Jan 11 2:08pm

In reply to @suzeg "I’m am worried sick. My creatine protein ration is 211. My creatine is 1.05 and my..." + (show)

I am an 82 year-old pre-diabetic (5.7)woman. I was diagnosed with 3a in 2020 when my eGFR fell to 58, then to 48. I began drinking a lot more water and it rebounded back up. Since then it oscillates between 58-60. eGFR is a calculated number, not an absolute number. It is subject to errors on any single estimate. Over time it is easier to see if it is stable or dropping, especially if the other indices (BUN, creatinine, protein) are higher than they should be.

Nevertheless, I am now monitoring my diet and supplements. I keep a food diary (myfooddiary.com) and am reading and heeding Lee Hull's book 'Stopping Kidney Disease Food Guide'. I think taking your diet seriously and monitoring it is important to slow the progression of this disease. My goal is to maintain my eGFR where it is now.

cosettina | @cosettina | Jan 11 2:15pm

I am following this very good and well-known book: Stopping Kidney Disease Food Guide. Get it on Amazon or any bookstore.

my44 | @my44 | Jan 11 3:25pm

In reply to @cosettina "I am an 82 year-old pre-diabetic (5.7)woman. I was diagnosed with 3a in 2020 when my..." + (show)

Hi, @cosettina.
Thank you for your post. I'm going to look into the food diary and Lee Hull's book. Thanks for the info.

Ginger, Volunteer Mentor | @gingerw | Jan 11 9:47pm

In reply to @cosettina "I am an 82 year-old pre-diabetic (5.7)woman. I was diagnosed with 3a in 2020 when my..." + (show)

@cosettina Welcome to Mayo Clinic Connect! It's nice to read your story. Keeping track of your diet and supplements is important. It certainly doesn't take much time once you get into the habit, and the insights you can gain really help. Combining that with our labs results we can see trends; looking back wecan often see where there was a "blip" in our daily intake.
Ginger

vlbondon | @vlbondon | Jan 15 8:24pm

Just read a new post mentioning the book you will want to check out.
By a Dr Lee Hull, STOPPING KIDNEY DISEASE FOOD GUIDE.
There are many out there, check Amazon for best prices, but this one is on my my mind now.
Good luck, You can do it !!!

VLT