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DiscussionStarting 17th year with ET. What's ahead?
Blood Cancers & Disorders | Last Active: Jan 19 4:08pm | Replies (52)Comment receiving replies
Replies to "Hi Lori, Yes, I had JAK test and negative. I think they ordered more tests that..."
Was the rheumatoid factor testing part of the testing your doctor automatically did? I am waiting for my genetic testing results to confirm ET, but no one mentioned the rheumatoid factor. My mom had rheumatoid arthritis. She got it late in life and it was very severe. My symptoms fit ET diagnosis but I want to make sure there is not another problem lurking.
"Frustrated" is how lots of us feel when we develop complicated health issues.
Answers don't come easily.
You are doing everything right: Seeing a hematologist/oncologist, getting tests, and while awaiting further explanations, protecting yourself by taking HU and aspirin.
Having a blood issue you probably didn't even know was possible can make you feel really alone. In this forum, though, you're among friends. We've all been through it. We're here for you.