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Starting 17th year with ET. What's ahead?

Blood Cancers & Disorders | Last Active: Jan 19 4:08pm | Replies (52)

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@loribmt

Welcome to Connect, @1pearl. That diagnosis out of the blue had to really hit you like a ton of bricks! Having a platelet level considerably higher than normal has the potential for risk of stroke or blood clots. Hydroxyurea is a medication that is used by people whose bone marrow is producing too many of a specific type of blood cells. In your case it is too many platelets. The low dose aspirin, taken daily, acts as a blood thinner to keep platelets from sticking together and forming blood clots.

You mentioned the level dropped 25% from the first labs.
If you wouldn’t mind sharing a little more about your experience, I’m curious about how high was your first reading? Are you seeing a hematologist for your diagnosis?
Were you ill with a virus or other infection in the weeks before your first set of labs?
How much time was between the first and 2nd set of labs?

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Replies to "Welcome to Connect, @1pearl. That diagnosis out of the blue had to really hit you like..."

Thanks for your reply. My first lab was 12/16/24 and level was 1255000 and 1/10/25 was 988000. I just saw the hemotologist/oncologist yesterday. Yes, I was sick with a sore throat the weeks before my first lab. I was very sick with what seemed like a bad cough, sore throat, and cold on a family vacation to Switzerland in mid July and it took at least six weeks to recover from that. Prior to that, I had not been sick with anything for years! So yes, this new diagnosis is very stressful.