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@kerstij

I’ve said this before. This is a new way to reach out. I still don’t know how to just post something without going through my first contact which was Lori…. So for now, I’m going to start my journey for being a caregiver (aside of our kids)…..

Life went upside down in spring of 2003. Our kids were 11 & 13.
My only brother 6yrs younger than me died in a car accident. I had to step up & identify him & make sure he was viewable for our parents…. My husband & I handled all arrangements & got through it. Sad thing is that we were supposed to meet up with him because his exwife wanted to move out of state with their daughter…..they had joint custody & he wanted to know what he could do to stop her from leaving….Unfortunately we weren’t able to meet up that day because he had……….died on his way home from work…. Covering for another manager at Costco…..

That was the beginning of a very tough road.
I live in Snohomish Washington & right now I need to get our dinner together before I need to put together his evening/nighttime meds.
I REALLY want to get this off my chest…. I now know that there’s more of us out there dealing with A LOT of stuff… I will pick up where I left off tomorrow but right now I have my hands full…..

For all caregivers out there….stay STRONG!!!!!
It’s a tough journey but we’ll get through it 🙏

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Replies to "I’ve said this before. This is a new way to reach out. I still don’t know..."

Hi @kerstij, I’m so glad that you’re feeling more comfortable about opening up and sharing your story. It can be liberating to get things off your chest! You’re doing great. ☺️

It’s so tragic about your brother and I’m sorry for your loss and for his little girl to lose her daddy. Did she then go out of state with her mom? Do you have any contact with your niece?
I know you have quite a challenge on your hands now with your husband, his GVHD issues and hesitancy to take his medications. I wish I had suggestions for you. Some patients cope with adversity after a traumatic medical conditions on their own and others can really benefit from some counseling. When I was in my 100 day stay for the BMT, I participated in a research project with a psychologist. The project was about how to spot people who may potentially suffer from PTSD following the transplant. It is very common for anyone going through transplantation, whether bone marrow or organ transplants, to have post traumatic stress. I’m wondering if it might help your husband to be able to discuss his anger and non-compliance with a counselor. Does the BMT team for your husband have a counselor on staff?