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DiscussionAny help for caring for husband w/Leukemia & Parkinson’s?
Caregivers | Last Active: 8 hours ago | Replies (21)Comment receiving replies
Replies to "I’ve said this before. This is a new way to reach out. I still don’t know..."
Hi @kerstij, I’m so glad that you’re feeling more comfortable about opening up and sharing your story. It can be liberating to get things off your chest! You’re doing great. ☺️
It’s so tragic about your brother and I’m sorry for your loss and for his little girl to lose her daddy. Did she then go out of state with her mom? Do you have any contact with your niece?
I know you have quite a challenge on your hands now with your husband, his GVHD issues and hesitancy to take his medications. I wish I had suggestions for you. Some patients cope with adversity after a traumatic medical conditions on their own and others can really benefit from some counseling. When I was in my 100 day stay for the BMT, I participated in a research project with a psychologist. The project was about how to spot people who may potentially suffer from PTSD following the transplant. It is very common for anyone going through transplantation, whether bone marrow or organ transplants, to have post traumatic stress. I’m wondering if it might help your husband to be able to discuss his anger and non-compliance with a counselor. Does the BMT team for your husband have a counselor on staff?