Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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@ageiswinning

My meningioma, based on MRI is 'right frontal pole, with mass effect upon the right-sided Gyrus and olfactory cortex'. I have no idea whether it's near the optic nerve, but vision issues and nausea or my biggest symptoms. Did your MRI indicate that it was near the optic nerve or the doctor after you saw them? I am worried that they will say the vision issue isn't from the meningioma or that it is to small to cause the symptoms (see that on some other posts) -- My biggest worry is that someone will tell me that I am fine which will be a relief, but also will result in me dealing with the vision issues indefinitely. What were your symptoms?

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ageiswinning: Sorry, I just saw your question after 2 days. The MRI did not indicate it was near the optic nerve. I was told that after consulting with the neurosurgeon to discuss the fact that I had an almost 3 centimeter meningioma. I had vision issues which my optometrist called "ghosting." It was like the letters were stacked on top of each other. I also had sinus issues. And, for a few years prior to being diagnosed, I would point out to my husband that one of my eyes drooped, was not symmetrical with the other. Of course, after being told the location of my main meningioma (meaning the largest of the 3) the eye drooping made sense. I hope you are able to get into seeing a neuro doctor soon to find out more information.

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