Huntsman Cancer Institute in Salt Lake has a NETs specialist--however I think she specializes in digestive. Might be worth seeing if you can get a consultation. Heloisa Soares, MD (Medical Oncology).
She might also be able to refer. Wishing you well—and glad you finally have a diagnosis. I was referred to Huntsman by my PCP but eventually referred back to University of New Mexico where the NET specialist was trained by Dr. Soares. My NET is in my breast--unusual--and eventually treated as breast cancer. But I thought I'd add in Huntsman, as they have a good reputation and are local to you.