← Return to HCM-ers: Introduce yourself or just say hi

Discussion

HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: 5 days ago | Replies (930)
Comment receiving replies
@joan79

I have a history much like you from age 18 with heart murmur. No symptoms for 6 decades until uncontrollable BP and SOB. Had opinion in spring 2024 after cath was for replacement of calcified aortic valve with TAVR procedure. Second opinion after TEE advised open heart surgery for enlarging aortic root, aortic valve replacement, severe sub aortic stenosis, with basal septal ridge, septal myotomy/myectomy. Third opinion agreed with open heart surgery. Knowledge is power and trust your instinct. Amazing what value these postings have to others.

Jump to this post

Replies to "I have a history much like you from age 18 with heart murmur. No symptoms for..."
Debra, Volunteer Mentor | @karukgirl | Jan 10 10:05am

It looks like this is your first post, so thank you for sharing your story @joan79.
And that is quite a story you have. Six decades with no trouble and then all sorts of things went wrong. I'm glad you have been able to find value in Mayo Connect and that you want to know as much as you can to be your own best advocate.
Do you also have HOCM (Obstructive Hypertrophic Cardiomyopathy) What is your next step? Have you been seen by a Center of Excellence with any of your opinions?

VIEW AND REPLY
joan79 | @joan79 | Jan 10 10:27am

Had surgery @ Mayo in July. What is the Center of Excellence? Also I know someone who survived a widowmaker heart attack and doing well. Where does one find written info about the importance of getting emotional support to address the anxiety created by that event.

VIEW AND REPLY