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Is a cure on the horizon

Eye Conditions | Last Active: Jan 13 5:03pm | Replies (18)

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@mostlyjackie

When I lived in NY, the guy that was supposed to be looking at my retina was basically a scam-artist (I realize that now). So when I moved to Florida and had my eyes examined, the doctor said, "So, did you have an eye injury?" Then he looked at the other eye and said, "Oh, no. So, you have Macular Dystrophy." I went to an opthalmologist who confirmed it was AMD. You probably know that it's really a waiting game until you either turn wet or (in most cases) it remains dry. So, even if I were diagnosed early on, I don't think it would have changed much. I wouldn't beat yourself up much about the quick progression. I don't think you could have done much to thwart it.
That doctor saw me every six months and would just say, "You're stable; keep taking the vitamins." I don't think he ever said I was early, intermediate, or advanced. Eventually, when I realized the lines on the Amsler Grid were no longer straight, I got into my doctor and he referred me to a retina specialist. Thus, wet AMD in my right eye. When I auditioned for the PreserVision commercial, I mentioned that every doctor said, "But you're too young to have AMD," and I'd always say, "Well apparently that's not true!"
The injections have been a game-changer. My vision (with correction-I've always been very near sighted) is 20-20. My retina doctor claims I won't lose my eyesight, will always be able to drive, etc. Don't be scared. This is not a blind-death sentence! We are living in an amazing time! They say there's no cure, but eventually if I only need an injections once a year, I'm good with that. A Johns Hopkins study showed that 30% of us will only need a year of injections. I don't know how long that will last, but it's promising. I am healthy in just about every other way, and am grateful this diagnosis is not going to kill me (or cause blindness)!

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Replies to "When I lived in NY, the guy that was supposed to be looking at my retina..."

Which part of Florida are you living? The leading retina specialist is in Miami, Bascom Palmer Eye Institute, and I hope to been seen by them one day.
If you're taking AREDS2 then you are intermediate stage because AREDS do nothing for early stage.
I was told once that I most likely have a Pattern Dystrophy but that has been supported by none of the other specialists I've seen. I think that specialist can't believe I would have AMD at the age mine started but it did. Just like you.
I know it's hard to be afraid of the future with this despicable disease. But it's hard not to be. I'm only 56 and I'm very active and love life. I just hate that I may never be able to enjoy the things I've worked to hard for in my future retirement. I hope I don't sound selfish.
I've been told by doctors and people I've met on here, just like you said, it's not a blind-death sentence. I hope not. I sure hope and pray I don't lose my independence or can't drive anymore. I just don't know why this started young in me or you for that matter. I just hope I'm not late for a cure if it ever comes to be.
I think it's neat you're in the preservision commercial. Which one? Maybe I'll see you.
BTW, I have brown eyes, light/golden brown according to my opthalmologist, brown hair and olive skin. So dis my dad. Go figure, when they can't blame it on being blue eyed/light hair, fair skin, Caucasian, European lol they blame it on genetics.