Chronic small bowel obstruction from adhesions

Posted by ginpene @ginpene05, Apr 6, 2017

This is my 5th SBO with hospitalizan in 18 months, due to adhesions. No surgery yet, but am considering Small Passage treatment. Last 3 times happened in the last 4 months. This is getting old. Any idess?

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@ginpene05

Hi. My appendix burst when I was 6yr old, and the surgical team left gauze in me, so a 2nd surgery was required. I had tuboovarianplasty at age 30. A laparoscopy at age 50 found tons of adhesions. My 1st SBO was 1 and a half yr ago at age 63, and I am in for my 5th right now!The good surgeons here correctly refuse to operate until I am really bad. So, feeling pretty deesperate, I plan to seek holistic PT treatment at Clear Passage. Anybody else know of them?

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ginpene I was wondering if you went ahead with the clear passage therapy? I am also considering the therapy but it is expensive and I don't want to spend all that money and not really get what I am paying for. thanks @striplingmom

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@ginpene05

Hi. My appendix burst when I was 6yr old, and the surgical team left gauze in me, so a 2nd surgery was required. I had tuboovarianplasty at age 30. A laparoscopy at age 50 found tons of adhesions. My 1st SBO was 1 and a half yr ago at age 63, and I am in for my 5th right now!The good surgeons here correctly refuse to operate until I am really bad. So, feeling pretty deesperate, I plan to seek holistic PT treatment at Clear Passage. Anybody else know of them?

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I am considering the clear passage therapy as well did you do it? Did it help?

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@loriel59

I have been having bowel obstructions for almost 4 years. No one could tell me what was going on. I was getting them almost monthly. Worst pain I've ever gone through. At one point I lost 17 lbs. In October 2015 I finally ended up in the emergency room. This is when they finally found the small intestinal obstruction. The thought is that they are caused by abdominal radiation I got back in 2003-2004 for Non-Hodgkins Lymphoma.
I sometimes go 3-4 months without an attack, but that is rare. They are part of my life.
The surgeon told me that if I end up back in the hospital, it's NG tube again. If NG doesn't work its emergency surgery.
The problem with surgery is that there is a 60% chance of it creating more adhesions, hence I'd be worse off.
I try to each low fiber even though I am a vegetarian. I cook my veggies. I don't eat any raw. No corn. I peel fruit like apples. Honestly, I feel I never know what helps and what doesn't. It's beyond frustrating and not an easy way to live. I've gotten attacks on vacation (totally bedridden in Paris!). I am in horrible pain for 24-48 hours. Then I'm sick for 4-5 more days. I feel for everyone battling this.

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I have scar tissue from 5 abdominal surgeries
I take Miralax everyday and a tablespoon of olive oil
I eat low fiber, but I include a little avocado and sweet potato and spinach everyday
I try to drink 65-80 ounces of liquid
So far I’ve been moving my bowels everyday although they are much thinner than my usual ones they are soft

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I have a question for the small bowel obstruction support group. I hear that one shouldn't eat bread but I have a hard time not eating any bread and if I don't eat bread I am constantly hungry! So I do eat a bit as well as some small pastries which I know aren't meant to be good for the bland diet I am trying to follow. I am wondering if gluten free bread might be ok and if it would be better for SBO people like myself.

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@janetwass

I have a question for the small bowel obstruction support group. I hear that one shouldn't eat bread but I have a hard time not eating any bread and if I don't eat bread I am constantly hungry! So I do eat a bit as well as some small pastries which I know aren't meant to be good for the bland diet I am trying to follow. I am wondering if gluten free bread might be ok and if it would be better for SBO people like myself.

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I have a hard time as well not eating pastries and bread. I will eat them in small portions and I will chew thoroughly, more than 20 chews each small bite. I am also careful to make sure that my bread or pastries has no more than 1-2 grams of fiber. So I will eat maybe one piece of white bread toast in the morning with some butter. I also take olive oil everyday at here is actually a study I found on the benefits of olive oil for SBO due to adhesions. Since I started taking olive oil I have not needed any miralax in about a month now and my discomfort has become less often and less intense.

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This is very helpful,,, thank you so much. I admit that I do have some whole wheat occasionally as I understand one does need some fiber. Also there is a big difference between soluble and insoluble fiber and I try and stick to the soluble. Interesting about the olive oil.. I will definitely look into that. I would love to give up the Miralex or at least cut down the amount of times I have it. I had exactly the same -- adhesions and a SBO and would do anything not to have another one.

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I have short gut syndrome. I only have 2ft of my small intestines left but I still have my large intestines. Some people with short gut syndrome shouldn't take Miralax. Miralax can work the opposite way. Miralax made me constipated and dehydrated.

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@shaleenv

I have a hard time as well not eating pastries and bread. I will eat them in small portions and I will chew thoroughly, more than 20 chews each small bite. I am also careful to make sure that my bread or pastries has no more than 1-2 grams of fiber. So I will eat maybe one piece of white bread toast in the morning with some butter. I also take olive oil everyday at here is actually a study I found on the benefits of olive oil for SBO due to adhesions. Since I started taking olive oil I have not needed any miralax in about a month now and my discomfort has become less often and less intense.

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I have questions about olive oil. How much a day and how do you take it? I use Miralax every other day now.

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Here is a pic of the olive oil I use. It is hard to find. I recently ordered it on Amazon. I take 1-2 teaspoons. I take Teaspoon daily, if I have not had a bowel movement all day I will take an extra teaspoon that night and the next morning I usually go. I just take it straight. Using this olive oil here there is really no taste, I usually drink some apple juice right after just to rinse the oil out of my mouth.

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@shaleenv

Here is a pic of the olive oil I use. It is hard to find. I recently ordered it on Amazon. I take 1-2 teaspoons. I take Teaspoon daily, if I have not had a bowel movement all day I will take an extra teaspoon that night and the next morning I usually go. I just take it straight. Using this olive oil here there is really no taste, I usually drink some apple juice right after just to rinse the oil out of my mouth.

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Oh my gosh! I looked up the ingredients in your "olive" oil. There is very little actual olive oil in that bottle! The first ingredient is soybean oil. Next is mineral oil and last is olive oil. It is probably the mineral oil that is helping you go!

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