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Anyone in the World ever heard of or diagnosed with Hemaglobin Sabine?

Blood Cancers & Disorders | Last Active: Jan 9 12:16pm | Replies (5)
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@suanne90

It has but the doctors say because she doesn't have a sibling for matching, the chances of a bone marrow transplant being successful is not the way to go. Thank you all very much for your input.

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Replies to "It has but the doctors say because she doesn't have a sibling for matching, the chances..."
Lori, Volunteer Mentor | @loribmt | Jan 9 12:16pm

@suanne90, There may be other options for analogous donor matches when there are no suitable family members available, such as Umbilical cord blood (UCB) transplant.

I’d really suggest having a 2nd opinion for your little girl. Bone marrow transplants can be quite successful. Often a larger teaching/research hospital can a larger range of medical capabilities. Don’t give up hope!
Here is a link to The Mayo Clinic to request an appointment if this is a possibility for you:
http://mayocl.in/1mtmR63
Do you have the opportunity for a 2nd opinion?

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