← Return to Porphyria: feeling of stomach being sawed in half

Discussion

Porphyria: feeling of stomach being sawed in half

Blood Cancers & Disorders | Last Active: 16 hours ago | Replies (6)
Comment receiving replies
@propitious

I just want to say that I am very grateful to everyone who responded. I am not on social media at all and don't really know how this all works. (I didn't know which reply button I was supposed to use; the top blue one or the bottom grey one) Your responses within hours of posting my questions has completely awed me. Thank you! Wishing perfect health, peace and love to all in 2025.

Jump to this post

Replies to "I just want to say that I am very grateful to everyone who responded. I am..."
Lori, Volunteer Mentor | @loribmt | 16 hours ago

Good morning, @propitious. You did just great for your first foray into social media. Connect is a safe environment to seek help and support from others.
I know it can take time to get the wheels of medicine moving so I hope you’re able to get some help for your daughter soon. As you can see, there are many of us concerned right along with you.
Please stay in touch and will you let us know what you find out?

VIEW AND REPLY