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Could these symptoms be related to SFN?

Neuropathy | Last Active: Jan 11 3:42pm | Replies (11)

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@jmf123

Update
My neurologist called today and said skin biopsy came back negative. While that is good news, it’s also frustrating because he told me there is nothing else he can do and to work with my GP. I’m so upset. All bloodwork has come back ok. MRI of the head a year ago was ok. MRI of the spine was ok. Is there not something else that can/should be done to investigate the pain I am in? The pain is intense and it’s extremely difficult to function. My face burns and at times feels cold, my legs, ankles and feet are burning but my feet can feel a cold sensation and my body throbs. My sinuses and ears are impacted as well and the insomnia is unreal. I’m floored that I can be told there is nothing more that can be done. Would a spinal tap help? These are clearly nerve related issues.

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Replies to "Update My neurologist called today and said skin biopsy came back negative. While that is good..."

You might want to see a rheumatologist. Not because I think they can fix these things, but they might be able to do specific labs that I’d some of these symptoms together. It never hurts to have another set of eyes on the problem.
If you are near a large teaching hospital, I would head there.
I flew from Alabama to Cleveland Clinic at the beginning of my saga, 10 years ago.
The diagnosis of SFN came from a local doctor, but he could see the notes and opinions of peers in other places and other specialties.
Now I’m back to a respected teaching hospital (UAB) to research this dizziness. They have a team that is focused on helping me. That’s worth a lot.