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Cavernoma

Stroke & Cerebrovascular Diseases | Last Active: Feb 12, 2019 | Replies (46)

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@placyhall

Hi my Placy Hall 9/30/2018 I was diagnosed same problem as you. Few months later I had a visit with neurosurgeon and he told me to wait for a year to have n other MRI because I still have blood in my brain, and surgery was out of the ? Because a was very dangerous. But I have headache and nausea, my body hurt and I cannot sleep well. Do you think they can help me ? I’m sooo over it feeling bad every day.

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Replies to "Hi my Placy Hall 9/30/2018 I was diagnosed same problem as you. Few months later I..."

Hi, @placyhall, and welcome to Mayo Clinic Connect. I'm sorry to hear you still have blood on your brain and also suffer headache and nausea, body aches, anxiety, panic episodes and insomnia. I can imagine that would be very challenging.

Hoping that members in this conversation like @gothope @surfwid @kat9606 @brenda68 @maria7521 @needanswers1974 will return and offer some suggestions about remedying these symptoms you are experiencing. I'd also like you to meet @jenniferhunter and @hopeful33250.

If I understand correctly, @placyhall, you have experienced two strokes due to your cavernous malformation?