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Anyone diagnosed with a cavernoma?

Stroke & Cerebrovascular Diseases | Last Active: Apr 13 8:48pm | Replies (51)
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@surfwid

I am in swallow therapy. We started with speech therapy, but the therapist thought we needed to start first with the swallow. I'm fine swallowing food, but choke on clear, thin liquid. I have purchased nectar consistency drinks from the grocery store. You can find them (manufactured by KERNS) in the International section of the grocery store.

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Replies to "I am in swallow therapy. We started with speech therapy, but the therapist thought we needed..."
Lisa Lucier, Moderator | @lisalucier | Oct 22, 2018

Hi, @surfwid - I'd like to add my welcome to @jamienolson's. I'd like to invite @maria7521 @brenda68 @kat9606 @needanswers1974 and @hopeful33250 from this discussion to meet you. Hoping they may have some thoughts for you on choking when swallowing thin, clear liquid; dizziness; exhaustion and speech slurring.

How are you managing the exhaustion and the dizziness, other than not driving presently?

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