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Yes! I had one in 2006, I was 43 years old. I’d spent a month in bed due to severe nausea and vomiting all day long. I was admitted to Scottsdale healthcare on two different occasions and left each time still vomiting. They did multiple MRIs and Tests only to eventually tell me they could not do anything for me I would have to wait it out. They finally admitted I needed surgery but the location of the brain bleed was in such a high profile area they had nobody qualified to perform the surgery.
After much research by multiple people and family members I ended up at the Barrows Neurological Institute and Dr. Spetzler performed the surgery. After scouring the country for a qualified doctor we discovered Spetzler was considered the best in the world at this particular surgery and at that time. People came from around the world to see him, he even developed his own specialized instruments. Anyway, he saved my life and I’m perfectly fine and happy. Spetzler retired recently but his team is highly trained to smoothly continue his work. If you needed surgery I don’t know who would do it at Mayo?
I hope this helps!
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Hi, @kat9606 -- that's a high compliment that your doctor saved your life with your surgery for cavernous malformation (CM). That's wonderful.
You asked whether if someone needed surgery for CM, who would do it at Mayo Clinic? Here is some information on neurosurgeons (as well as neurologists) who treat this condition at the Mayo Clinic campuses in MN, FL and AZ: https://mayocl.in/2Mrj07G.
@kat9606, you also wondered about why you would be getting notified via email for a post from 2016. I realize that would seem puzzling. Though the discussion started with @guzzie in 2016, it's continued on till the present. You may have been notified of more recent posts by @maria7521@ees1 and @brenda68.
Have you had any residual effects from your CM surgery?