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Any EDS hypermobile types that have had ablation?
Heart Rhythm Conditions | Last Active: Jan 9 5:03pm | Replies (12)Comment receiving replies
Your reply is very helpful. I’m trying to get my EP to acknowledge that my healing won’t go according to most ablations he performs, and what to be watchful for. I’m also concerned about my pelvis and cervical spine during the procedure. These are my two big unstable points; also a shoulder and knees. If your doctor could be open to chatting with me or communicating with my EP, I’d be relieved. Thank you for your thoughtful reply. I hope you continue to heal and that the pacemaker stays in place.
Replies to "Your reply is very helpful. I’m trying to get my EP to acknowledge that my healing..."
I have Hypermobil EDS and Osteogenesis Imperfecta as well as a congenital heart defect. I had 2 ablations and both had delayed healing one, also dislocated both shoulders and caused a minor heart attack so definitely be cautious.
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I am cautious about giving out too much info on personal info on a public site. If you want to message me I can send my cardio’s name ( he is not on staff ant Mayo) and my Mayo EP’s name. My cardio is really booked out but he might be able to do a video visit? I have trouble getting in to see him. I did see a young resident at Mayo that seemed to know EDS, I can share his name too. But I have no regular cardio at Mayo as they were too overextended to assign one.