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Hi @brenda68,
I'm so glad the new you shared her story on Connect – Welcome!
We have several members talking about cavernoma – please meet @ees1 @jeans @bellisima @jc2buds @nancye3 @pegorr.You may also be interested in joining this discussion:
– Meningioma and Cavernoma https://connect.mayoclinic.org/discussion/meningioma-and-cavernoma/
To answer your concern about why cavernomas may bleed, here's some detailed information from the American Association of Neurological Surgeons (AANS): http://www.aans.org/Patients/Neurosurgical-Conditions-and-Treatments/Cavernous-Malformations
I've copied a few key points, below:
"Since the walls of cavernomas are weak, cavernous malformations can rupture and cause brain bleeding — also referred to as a bleeding, or hemorrhagic stroke. Symptoms that suggest brain hemorrhage are sudden onset of severe headache, nausea, vomiting, weakness or numbness on one side of the body, difficulties in speaking or understanding speech, loss of vision, double vision and balance difficulties. Brain hemorrhage from a cavernous malformation is a serious form of stroke, but one that is typically nonfatal. "
@brenda68, have you noticed any of these symptoms mentioned above? Has your doctor outlined any specific treatment between now and your next scan?
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Hi,
I had an MRI last october with lesions on my brain, and was diagnosed with "MS", and have had many MRI since then , and recently my headaches have been getting more persistent and also, now i seem to be getting "dizzy " spells, and more nausea. which is a new onset for me. at the time i had the MRI last oct , they had seen a "spot" on my spinal column, which was concerning, but was assuming it was MS , related. and now i had another MRI, with the new onset of symptoms. at this time few weeks ago, they have now diagnosed the spot on my C2, of my spinal column, a cavernoma, not anything MS related, at this time they took me off all my MS medications and i am not to take anything, to wait till the next MRI to see if there is anything changes. to make sure the lesions in my brain are "MS', or tumors, of the cavernoma relation. i am just concerned. if i should be worried?? having these blood vessel type tumors?? he wants to do a biopsy of the one on my C2 spinal column but states it is to risky at this point till we for sure do the next MRI to see what or if there are any changes at that time. has any one else heard of this or anything else related to this. in october i had a second opinion , at the MAYO. and they were pretty consistent with the hospital i am currently going to the doctor with. i just am concerned with my light dizzy spells, etc.
thanks for listening... any information will be greatly helpful 🙂 thx