Welcome to Connect, @guzzie; you’ve come to right place to find people with the same diagnosis to share information and experiences with you. I can only imagine how anxious you must be with a diagnosis of Cavernoma or Cavernous Malformation. I’m so glad that @caira connected with you.
Caira, it must be so frustrating that you are not finding any relief from your medication. Hopefully, the new doctor will have more to offer; please do keep us updated.