Hi @caira. I have not had seizures either, thank goodness. I have not been on any meds outside of the hospital. In the hospital they had me on Keppra, some pain med I don’t even know the name. Did they advise you the cavernoma would grow over time? I’m sorry you are in so much pain, you’re right without being able to take any OTC pain relievers stinks, Tylenol is all we can take. My Neurologist is trying to set me up with an Interventional Radiologist and Vascular Cerebral Surgeon in Pittsburgh, PA. He says Interventional Radiologist is supposed to be cutting edge tech especially for hard to reach cavernomas, have your doctors recommended either? Neurologist feels it should be removed but has told me I maybe as bad as I was after the bleed, my speech was non existent. I have regained about 98% of my speech. My long term memory was never affected, short term memory I am still working on but most people do not see any deficits. I am so thankful, which is why I feel like seeing about surgery is rolling the dice, not sure if I could start over again. Neurologist says there a 1 to 4% chance of rebleed, don’t know how much I can depend on that. Let me know about the pain med. Once I have names I will definitely share.