← Return to What are treatments for myelofibrosis?

Discussion

What are treatments for myelofibrosis?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (23)

Comment receiving replies
@rhollis

Thank you for this helpful information @loribmt!

For me symptoms have been hair loss, fatigue, and symptoms related to anemia such as some shortness of breath,

I am hopeful that interferon will prevent disease progression.

The blood work was also a tip-off. I had been previously misdiagnosed with ET, as the assumption was made based on CALR without ordering a bone marrow biopsy. I had a bone marrow biopsy in Nov. and it was determined that I have primary MF.

Jump to this post


Replies to "Thank you for this helpful information @loribmt! For me symptoms have been hair loss, fatigue, and..."

There have been so many positive changes for MF patients over the past few years with research and development of new treatments options.
I’m hoping you have the same success and there’s no reason to think otherwise. ☺️
I’m glad your doctor went the extra mile and recommended the bone marrow biopsy. This helped get you on the right path to the appropriate treatment to slow or deter any progression of the MF.
Do you know the name of your interferon yet or when you begin the meds?