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Tamoxifen and Fibromyalgia

Cancer: Managing Symptoms | Last Active: 1 day ago | Replies (20)
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@imjodi

Hi, I'm on this road right now and I am so miserable! I have tried just about everything! NOTHING HELPS and Dr's and nurses DON'T understand or "get it!"
I'm in bed crying and searching for anything that will help!
Cannabis does help a little but it's expensive!
The pain and aches and spasms and and and... I just sent a note to my Dr that I need a break from the Letrozole but I know I really shouldn't. HELP!

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Laurie, Volunteer Mentor | @roch | 1 day ago

@imjodi

Welcome to Connect, many members have had bad experience with Letrozole and other Aromatase Inhibitors (AI). It is always a tough decision when evaluating risk of not taking a medication due to side effects vs the good it does controlling cancer. Your provider might suggest a different AI or advice on medication to help with side effects. Can also ask about risk factors if stop taking. Do not stop taking medication without discussing with your doctor.

Are you taking Letrozole for Breast Cancer? If so, have you looked at Mayo Connects support group for Breast Cancer? AIs are a frequent topic. You might want to start with this discussion: https://connect.mayoclinic.org/discussion/decision-about-letrozole/

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