Hello,
I have suffered with multiple chemical sensitivities for years and now my symptoms after coming into a space with fragrances or scents are becoming debilitating. I have gone from having anaphylaxis reactions to tasting these fragrances in my mouth accompanied by a terrible burning taste and inflammation in my mouth and on my lips. It happens constantly now and my standard of living is being affected. I go to church and it happens. I go to work and it happens. I never visit others homes because I have no idea what chemicals and scents, fragrances, sprays or even dryer sheets they may be using.
I contacted the Mayo Clinic in Jacksonville through the online portal. The request started in immunology or allergy department. I got a call from dermatology??? They said they couldn't help me and focused on the "burning mouth syndrome" and not my reaction to chemicals and fragrances. Dermatology sent me back to immunology/allergy and the lady said they don't deal with fragrance allergies.
It appears that everyone is missing the fact that I am in chronic pain and I don't know who to reach out to or where I can start to try to get some coordinated care. I have gone the ENT route, primary care, dental, and digestive route.
I need help.