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Grief of transplant

Transplants | Last Active: Jan 18 4:51pm | Replies (20)

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@dotygl

I wrote earlier, but a lot has happened since 12/24/24 when my husband with kidney transplant 6 yrs ago had 3rd urinary tract infection *UTI in 30 days. Our holidays were him in dire pain and had rehearsed this same situation twice and knew not to go into emerg room on 12/24 or 12/25 due to insanity of ER in any hosp. He lets his local nephrologist know the 3rd UTI is back on 12/26 and at noon we are sitting in a room for 7 hrs in the ER 25 min from our house waiting for an inpatient room. While in ER a group of doctors including his nephrol discussed best different antibiotic to take by IV (reason for inpatient status 5 days). So a drug was chosen and he was put on it as we sat and sat waiting for a room to vacate in hospital . Our last time in an ER was 2/2019 and avoided such places like the plague especially with COVID-19. Around 710pm a room was located and he was taken and settled in. I left 90 min later. THe following problems revealed when we arrived in the ER at noon 12/26 and we told every medical caregiver over and over "he is a kidney transplant recipient and has serious immunocompromised health issues and no immunity from COVID-19 and more. We wore our kn95 masks not taking them off all day except a sip of water. Over and over people working there nurses,doctors, lab techs came to care for him without a mask on! It was like a Twilight zone episode of employees in a hosp not wearing a mask to respect my spouse' immunocompromised health. We had never had COVID-19 or any type of sickness in over 6 yrs. I called the night nurse and explained in detail who my spouse was,his journey of getting the kidney transplant and problems and he has immunocompromised issues now and we lived isolated 'still' like lockdown March 2020. I started to cry on the phone I was so upset about people not giving a damn to wear a mask caring for him. The next day 12/27 I went into his room and a sign on closed door "Per Patient request: wear a mask to enter". He was there for one reason, get 5 doses in 5 days of this Iv antibiotic for a UTI that had stubborn bacteria to kill. He was discharged 12/30 last Monday 10am and that night 7pm he had cold symptoms and 12/31: "I" had cold symptoms and Jan 4 we both tested positive covid19 at home. I chose to get on Paxlovid through our family Dr on that date and a good friend brought it to my home. I have NO trust in the medical hospital caregivers who did not have the respect to put on a mask for my spouse . WE have been doing so much to protect his health for 6 yrs and came home like no one cares. When I feel better, I plan to write a severe letter to the CEO and other administrative offices about how they "let us down in a way that is so disrespectful of immunocompromised people ". WE have not shared a holiday with friends or taken a vacation or anything "normal' in 6 yrs. We left there with COVID-19 as their Christmas gifts . I feel so angry and pissed off about this . Is anyone else seeing a trend of employees not wearing masks when it is the right thing to do for the patient care?

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Replies to "I wrote earlier, but a lot has happened since 12/24/24 when my husband with kidney transplant..."

Hi, @dotygl.
I am so sorry for what your husband and you have gone through. As a kidney transplant patient myself, I too , have noticed the laxity sometimes in healthcare workers not taking proper precautions to protect those of us who are immunocompromised. Many workers don't wear masks. Some ask if I would like for them to don a mask. Of course, my answer is always yes. But I think they shouldn't even have to ask. They should automatically have on a mask when interacting with immunocompromised patients. That's just my opinion. I basically live in masks and never leave the house or go around people (individuals or groups) without having my mask on. I am concerned about my safety every time I have a doctor's appointment, lab draw, or diagnostic scan. I was absolutely petrified on New Year's Eve in 2023 (just one month after my transplant) when I had to go to the emergency room. It was packed with people who were obviously sick with respiratory illnesses. After checking in, I sat out in the hallway instead of in the waiting room. Fortunately, they called my name immediately, and the nurse took me to the room through a back entrance, bypassing the waiting room. I was so thankful for that. Anyway, I take my precautions and, to date, fortunately, I have not had any infections -- no covid, no cold, no flu.
So, we just need to keep doing what we’re doing to keep ourselves safe and healthy despite the carelessness sometimes of the staff. I do hope that you will write that letter to the CEO and other administrative offices. They definitely need to be made aware, and we need to keep advocating for ourselves. Best wishes to you and your husband. Hugs!