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Burning mouth syndrome – anyone else have this?
Skin Health | Last Active: Feb 2 5:49am | Replies (33)Comment receiving replies
The past timelines and details are getting fuzzy. I usually get an upper scope when I’m already out for a colonoscopy but have had a separate scope before. Have colonoscopies every 3-5 years due to polyp history and genetics. It has been 5.5 years for both but coming soon. I go to a GI specialist but just have my PCP order the protonix now. No Barrett’s so far. My brother had it but didn’t know till dx with stage III cancer. The cancer was only discovered because he had a massive heart attack and was put on blood thinners after heart surgery. The previously unknown esophageal tumor started hemorrhaging. Scary to know you can be so far along with no symptoms. He passed away 2 years after diagnosis.
I’m so hesitant to try new meds because I usually react. If protonix is causing any of my issues I haven’t made the connection. Sorry you weren’t able to take it. Best of luck to you.
Replies to "The past timelines and details are getting fuzzy. I usually get an upper scope when I’m..."
Too early to tell how my Barrett’s is looking like as only been treating 4 months. Getting the reflux under control and the burning mouth stopped is first step. I am taking folate for the Barrett’s. Hopefully when I have my next scope Barrett’s looks better but Barrett’s might take other treatments to eliminate.
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4 of my doctors asked me if I had reflux and I said no. I was shocked to find out not only did I have reflux but it had advanced to Barrett’s esophagus. It took almost 4 weeks for reflux medications to help calm the burning mouth. In hindsight the reflux and Barrett’s esophagus were screaming symptoms at me as a burning mouth, tongue, and tooth! I hope my experience helps other doctors and patients!