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Stem Cell Transplant Decision & Success
I am having a challenging time deciding whether to move forward with a stem cell transplant. I have AML with INV 16 and was diagnosed on November 18, 2023. Initially, I went through Induction Chemo followed by 4 rounds of Consolidation Chemo then I relapsed in Sept. 2024.
My challenge is getting straight answers from my oncologist about the risks, the chance of success, how long I may be down, etc., based on their experience with a 57-year-old male. The answers I receive are very vague. I would also appreciate guidance from someone who has been through an STC transplant. This too has been difficult. I left out that my donor is one of my daughters (half-match).
I would greatly appreciate sharing anyone's experience and input. I am very confused and the past 13 months have been a roller coaster. I would really like to get off this roller coaster.
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jeffhampton- OMG. With that caregiving team you will have one or more who may just be the extra help that makes it work. We found not all helpers are the same, but each helps. Each has a specialty like our doctor and medicals teams.
I am day 272 past transplant. Crazy. Things i did from the time i was released from the hospital at day 25. NO GVKD, you get released earlier at COH in Duarte, CA. At home guided by my DR's orders and Lori here on Mayo, I drank half my body weight of water daily, took every single pill at the time directed. Ate healthy and rested. This startedday27 till Day100 after transplant. Walking was essential. I started small, but every day, by the time i left my caregivers house i did 5000 steps a day. Now i walk about 6 miles a day more or less.
Being healthy at the start is essential. You said you were and the tests they have you complete before you can have a transplant must be passed to move forward.
It is hard for me to believe today i even had a transplant. But my hair is only 1 inch all over or a bit more. That is my reminder that i am 3 months from 1 year. Once a Bone marrow transplant patient, always one. Let me be a great patient!