← Return to Has anyone been diagnosed with pseudopheochromocytoma
DiscussionHas anyone been diagnosed with pseudopheochromocytoma
Diabetes & Endocrine System | Last Active: Sep 11 5:07pm | Replies (62)Comment receiving replies
Replies to "Hi. A lot of doctors don't know about this. Research Dr. Samuel Mann and pseudopheochromocytoma. His..."
@lisa11 hello! I just read your post and want to ask how are do you doing? I have totally same symptomatic but with normal metanefrinas and doctors do not know what to do and how help me.
Thank for you time and hope to hear from you,
Daria
@lisa11
I too have suffered from this condition since 2014. I have the ODT (Oral Dissolving Tablets of Xanax quarter of a milligram emergency tabs that bring my BP under control. Hypertensive meds do nothing for me. Thank the Lord I was diagnosed properly @ Shands UF in 2015, and am fortunate that I haven’t suffered a stroke during my many episodes of BP going upwards of 220/140 and higher. Thank you for the recommendations of the other books by Dr. Mann. I will print out the articles as well to share with doctors who are not familiar ( sometimes don’t believe) that this condition exists. It is very frustrating trying to educate others.
Connect

This is tremendously helpful. I’m going to reread it and look into the suggestions you gave. Thank you so so much. Are you episode free on your current regimen?