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← Return to Septal Ablation for HCM
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Hi @mummy12 - a second opinion can be helpful when considering options. That is something to consider in making a decision.
Here are a few questions to ask your doctor that may aid in decision making also:
What are the risks and/or benefits of each procedure?
Is it possible to first get consultations from both a surgeon who could perform a septal myectomy and an interventional cardiologist who could perform alcohol septal ablation?
Do you recommend that I visit a HCM center of excellence?
Which procedure is ideal for my individual situation?
How can I find out if a physician and/or medical center is qualified to perform alcohol septal ablation?
What do I need to do prior to my procedure to prepare?
What can I expect following the procedure?
What everyday activities should I avoid following the procedure?
When will I be able to resume my normal lifestyle and return to work?
Replies to "Hi @mummy12 - a second opinion can be helpful when considering options. That is something to..."
One thought is that the local chapter of the American Heart Association maybe be able to suggest some resources on sepal ablation in the NY area or maybe even put you in touch with some peers who have gone through the procedure. I believe the American Heart Association also has a forum and perhaps posting there might be another way to get feedback and reach out to others. They may have forums for different geographic areas. If there a certain treatment center or hospital you are considering they might be able to do the same.
The Hypertrophic Cardiomyopathy Association has a message board and Facebook community that is specific to HCM. http://www.4hcm.org
That would probably be a better bet if you are not limiting your search specifically for people with experience with the procedure at Mayo. There is a doctor in the NY area that was performing SAA and you will probably find some of his patients on the HCMA forums.
Thank you for the suggestion.
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Thank you for your helpful reply. I did visit the Mayo Clinic in September and their recommendation was septal ablation. I would like to find someone who has had this procedure and the outcome, preferably in the New York area.