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Typical Carcinoid Tumor in Lungs

Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (45)

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@californiazebra

So have you considered octreotide injections for the DIPNECH? My allergy issues are respiratory. I was told it’s not the 50+ tumors we can see on the CT scans that cause the symptoms but the hundreds or thousands of tiny nodules lining my airways that don’t show up on scans that cause it. This is based on my pulmonary function testing and just knowledge of the disorder. My constant coughing and other symptoms drove me and everyone around me nuts for 30 years. It was like neverending bronchitis.

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Replies to "So have you considered octreotide injections for the DIPNECH? My allergy issues are respiratory. I was..."

If I had symptoms that were bothersome, like your never-ending coughing, I would be looking into it. My symptoms are not that bothersome at this point. The time may come when it becomes more problematic.