Hello @ksyren, yes, it is really nice to be able to chat with people who are in the same boat.
Where would we be without Dr Google? Mayo Clinic is a wealth of information. Sometimes too much information is just a worry. My hematologist mentioned myelofibrosis at my last visit, he was still waiting for bone marrow test results. So, I google, myelofibrosis, wish I hadn't now. A bit worried about what will come next. Why would you say something like that if you still hadn't had all the results? Oh well will find out tomorrow when I see him. My GP is great.