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Typical Carcinoid Tumor in Lungs

Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (45)

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@jhhaas

It is interesting, isn’t it? However, I didn’t have those allergy symptoms like sneezing, etc. several years ago I got a super super bad cough that would not go away despite multiple antibiotics. My doctor kept saying maybe it was allergies so I finally let her test me. I was about 70 years old and for the first time ever had allergies! The theory was that it was producing the postnasal drip and causing infections in my lungs. They put me on one type of allergy shots for about a year, but the allergies were still showing up on testing so then they put me on Fasenra shots, which really is for asthma, but apparently also helps with certain allergies. It works by reducing the eosinophilic count. Since starting it, I still have to clear my throat and occasionally taken over-the-counter decongestant, but I have not had a cold, a flu, Covid, or any kind of illness aside from my lung NETS. And I feel about the same as before I got sick with the really bad cold and cough five years ago. It’s my guess that most of the symptoms were probably coming from the developing DIPNECH.

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Replies to "It is interesting, isn’t it? However, I didn’t have those allergy symptoms like sneezing, etc. several..."

So have you considered octreotide injections for the DIPNECH? My allergy issues are respiratory. I was told it’s not the 50+ tumors we can see on the CT scans that cause the symptoms but the hundreds or thousands of tiny nodules lining my airways that don’t show up on scans that cause it. This is based on my pulmonary function testing and just knowledge of the disorder. My constant coughing and other symptoms drove me and everyone around me nuts for 30 years. It was like neverending bronchitis.