Anyone had a large NET in the liver? What treatment did you have?

Posted by cindypat1 @cindypat1, Jan 5 11:40am

Has anyone had a large NET in the liver measuring 6 cm or more? What was the recommended treatment?

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tgsenn70 | @tgsenn70 | Jan 6 12:53pm

Yes, my husband does. His dr said it was nonaggressive and noninvasive. He’s taking a monthly injection of Sandostatin.

cindypat1 | @cindypat1 | Jan 6 2:20pm

Thank you. It seems like everyone has smaller ones and I don’t know which treatments that might eliminate. I hope your husband does well!

cindypat1 | @cindypat1 | Jan 6 2:29pm

I just had to look up Sandostatin. 😊 It looks like maybe it’s used for diarrhea. Is that what he’s using it for? Besides the large NET in the liver, I am also 71 with heart disease and high blood pressure. I feel like I have so many things against me. I’ll just have to wait until I gotoMayo next month and see what the say.

Colleen Young, Connect Director | @colleenyoung | 1 day ago

In reply to @cindypat1 "I just had to look up Sandostatin. 😊 It looks like maybe it’s used for diarrhea...." + (show)

@cindypat1, which Mayo Clinic location will you be going to? Is this your first time to Mayo?

cindypat1 | @cindypat1 | 11 hours ago

I will be going to Rochester. This will be my first trip there. Will have more testing and hopefully hear what they recommend for treatment. I don’t go until Feb. 20. So it’s still a long time to wait. Seems like forever since my testing and biopsy here!