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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 28 11:57am | Replies (877)
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@rrowner2

My husband was diagnosed with HCM at the age of 43, he checked in regularly with a cardiologist and took the same meds for many years. We traveled adventurously and in 2017 climbed a volcano to visit the gorillas in Rwanda at 73. In March of 2018 he collapsed at home and had a defibrillator/pacemaker implanted, his HCM obstruction was now impacting his life, syncope often, to the point he was not allowed to go off by himself ( we live in the back country of San Diego. He had a septal myectomy at Mayo in Rochester on October 4 2018 and is back to normal ( whatever normal is) 2019 we took a month long vacation to India. We were thrilled with care he had at Mayo and the continuing care from a young cardiologist. Hope this helps

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janetcf | @janetcf | Mar 20, 2021

Thanks so much for your reply and story! That is so inspiring to hear how your husband has been able to live a mostly "normal" life. I had an ICD implanted when I was admitted to the hospital, but no pacemaker issues for me - I'm glad. Your travels sound amazing and keep on having those adventures! I tell my grandkids I'm going to live to be 100! My husband and I are planning some trips (starting in 2022) where we will be hiking the mountains (in the United States for now). It was going to be this year, but that had to get postponed - for now we will be hiking the trout streams in Northeast Iowa and Southeast Minnesota! I've been impressed too with the staff at Mayo! Thank you again for taking the time to let me know there can be life after HCM! Take care and safe future travels!

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