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DiscussionAnyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (104)Comment receiving replies
Replies to "I have ET with JAK 2, diagnosed for a few years now. I take one hydrea..."
I worked in the college tutoring center until I retired. Students would come in sick and sit down to discuss papers right next to me. I used sanitizer, washed hands between "customers," printed copies of their paper instead of looking at their work on their laptops and touching their get my laptops. I was sick all the time and retired early, which affected my SS payments.
Last Christmas my husband did a musical program for the preschoolers at the library. He caught the sniffles. He gave it to me and I was sick for 6 weeks with a lingering cough.
I get mild nausea in the evening if I don't drink enough water (64 oz minimum). Water takes care of it. So does eating smaller, more frequent meals thru out the day.
BUT, my hematologist ordered Compazine for nausea when she put me on HU. I only needed it once, but it does help! Call your doc's office and ask about this. My guess is that it will just take a phone call.
This sounds awful. I'm so sorry. What you're experiencing is NOT "fine."
Are you aware that HU lowers our immune response? Could you be catching bugs in your work place, or other public areas?
I'm really paranoid about germs now. I keep hand sanitizer and in my purse and car. I wear face masks when I'm in crowded places. And I keep current on all the vaccinations that are compatible with taking HU.
HU can also cause a range of GI upsets. Do you take your meds with food? Some people find taking HU at night helps with GI distress.
It's not OK to feel sick all the time. Please bring this up with your doctor.