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Why Camzyos instead of surgery?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 days ago | Replies (31)

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@brumasterj

After years of telling my doctor about my exercise intolerance of having good days and bad days they kept telling me im getting older, it may be exercise induced asthma, and all the other things! I got admitted to hospital 2 years ago for breathing difficulty while out on walk, they ran all the test except stress test. At the time my resting gradient was 24 they diagnosed me with onset of mild cardiovascular disease and put me on carvedelol. I went back a few times and told cardeologist the medicine seems to make my work out worse! He kept menom it.
It wasnt until 3 months ago i had two back to back heart failures stress test 48 gradient resting and 122mmHg stressed!
They saw my blood pressure go down as well while on treadmill.
I decided to go to mayo and they said i had been misdiagnosed for years
Said surgery is best thing for me
They put me on camzyos while waiting for surgery date
After 3 weeks on camzyos
My resting gradient is 13mmHg and provoked is 31mmHg

I really dont want to me on medication and i dont like the heart palpitations i experience while on camzyos

I go back to mayo in 3 weeks for second ekg
Will see how much difference it has made

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Replies to "After years of telling my doctor about my exercise intolerance of having good days and bad..."

That must’ve been so frustrating for you.