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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
Thank you for responding to my post. I have been to California once, back in the 80's. Annehime, CA top be exact just beautiful!! You liked to hike daily, I'm sure it is very difficult not to be able to move about in the outdoors as you once did. It's difficult having your body not respond like it always has, like it just shut down and in order to make it work again you have to go through some major surgery to even go for a walk around the block, drive a car, or like you drive a car. Similar to your story, my insurance fought to pay for treatment at Mayo's due to being out of my HMO. I called them every other day pushing for an answer because COVID 19 was starting to get more and more coverage on the News daily. My insurance finally approved treatment on a Wednesday and when I called Mayo's reported two days before on a Monday restrictions were now in place until further notice. Wow! I couldn't believe it! In the mean time, another diagnosis came my way. An ovarian tumor, possibly uterine cancer. I'm 14 days past removal of tumor which was a Brenner tumor, and was benign and uterine biopsies were negative. Recovering from surgery and next week have colonoscopy for positive DNR of cancer. Praying for a negative there too. I think alot of people are hoping and praying for a better second half of 2020. I know I am.
Do you have a surgery date yet? Are you going to fly to Minnesota and back after your surgery? Is it safe to fly after Septum myectomy? Is someone going with you? I wish you the best and hope your recovery is swift and as easy as possible on you.
I know you will be in the best of care at Mayo's. One of my nurses used to work at Mayo's snd was telling me about its history and how it started, so interesting a Sister and the two Mayo brothers who were doctors began this wonderful institution and since it began, there are Sisters that pray 24 hours a day, they pray in shifts for the patients, their family, the doctors, nurses, staff. From what I read, they still do. I found that comforting and wonderful to know.
Best to you, Angelia
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Wow Angelia! You have a lot on your plate to say the least! You have faced so much already and still have more to deal with. You sound like you have a positive attitude and that will help you get through. I'm so sorry you have had such a difficult time lately. I'll keep you in my prayers that you heal from your surgery, and get through all the other things. If you do end up having a septal myectomy, you will want to be in the best shape emotionally and physically. So it sounds like it worked out the way it should not coming to Mayo sooner. They say everything happens for a reason. Take your time and heal yourself.
To answer your questions: Yes, my new surgery is July 8. When the pandemic shut down the World, we postponed it to July thinking Covid 19 would be in the rearview mirror by then. Who knew it'd still be hanging out there? I will be flying from Sacramento to MSP/St Paul with my significant other/designated bell boy. I asked this group of brave warriors about flying after a septal myectomy and the consensus was, yes, you can definitely fly. The folks on this sight that have gone through this have shared their experiences, and I can tell you, while each story differs, because we are all unique, their responses have helped me to not feel alone. I hope it helps you too. Before the Pandemic I lost my mom. The day before Easter I had to put my dad on Hospice, and four days later I lost my job at the hospital I've work at for 19 years. So what you said about those who pray are praying the next half of 2020 is better is so true...we all want things to get better. You take care of yourself. Best wishes facing your next challenge.