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@predictable

Hi, @estefania03, glad you dropped in with us at Mayo Connect, making you and me a party of two facing similar problems. I tend to suspect that hypertension is the cause of your family's cardiomyopathy, because your dad's situation and mine are similar, and I'm a 45-year practitioner of antihypertension therapy.

I had some difficulty qualifying for a new life insurance policy back in 1974 because of high blood pressure, then began round-the-year medical therapy for it 10 years later (age 50). After 20 years of fairly ordinary medication, my new HMO took a good look at my heart and found asymptomatic hypertrophy (their diagnosis was LVH as well). Other symptoms emerged over a few years, and the HMO referred me to a nephrologist, because my hypertension seemed not to be mainly a heart problem that would be relieved with the old medical protocols. My nephrologist diagnosed that part of my problem is Liddle Syndrome, a genetic mutation of the kidneys causing them to slough off potassium, and she solved that with a potassium-sparing diuretic. Then the cardiology team started looking at my heart again. We ran through all of the popular tests, except cardiac catheterization, confirming my cardiomyopathy but deferring therapy for want of significant symptoms.

Along came atrial fibrillation about seven years ago. It felt asymptomatic, showing itself only on my EKGs and blood pressure readings. But standard therapy with A-fib calls for an anticoagulant to prevent blood clots. I chose Coumadin for two reasons: 1) it involves regular lab tests monthly and 2) there is a ready antidote for it in emergency situations. By good fortune, my A-fib has never rattled my chest or caused any discomfort there. But it hit me the other way -- a small blood clot, apparently formed in my heart, blocked a capillary deep in my brain, causing a "small stroke." Physical therapy has helped overcome the stroke symptoms, and I feel rather normal now without any sense that my heart is working extra hard to overcome the resistance of the thickened ventrical walls.

My medication is different in only one respect now: I take Carvedilol, a beta blocker, to steady my pulse and ease the power my heart needs to drive blood out in my system. Otherwise, its Coumadin to prevent blood clots, my potassium-sparing diuretic, and Lisinopril, a kidney medication for my hypertension.

I once thought I'd relentlessly pursue a cure for the problems of my circulatory system, whatever the cost or the inconvenience. I long ago gave that up and developed plans for anticipating what might pop up and threaten me, so that I'll know exactly what to ask for at the emergency room if my wife ever has to call 911 over my heart problem. Life is a lot more calm and predictable, except for the coronavirus that's taking over now. Martin

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Replies to "Hi, @estefania03, glad you dropped in with us at Mayo Connect, making you and me a..."

Thank you for your reply Martin! It feels better knowing someone else is in a similar situation! You do sound like my dad, he too found out about his high blood pressure around 1970 when he was drafted and he failed the physical. He tried to sign up for the armed forces after he finished college but failed the physical again. He always had a bit of a weight and diet issue, and his siblings do have hypertension issues as well so I guess that does run in the family. I guess he never did anything about his blood pressure until years later. He, too, never had any symptoms of a thickened heart (he knew he had it from his echo done at age 50 just to see what his high bp had done), or any other cardiac symptoms, until the first time he had AFib at 67. He didnt know what was happening so that was what prompted the doctor visit. Now if he goes into it he can tell but it doesnt bother him enough to stop what hes doing. I think it wasnt until he and my mom moved down to South Carolina (where we are now) that he really got his bp under control (hes way more active now in the warm weather! Were originally from Ohio). I am glad that you were able to recover from the stroke, and that you have figured out what is working to control your blood pressure!! Thank you for chatting! Stay safe during the covid-19!