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Autoimmune Hepatitis and remission?

Autoimmune Diseases | Last Active: 14 hours ago | Replies (12)

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@mydiamondsx8

I was diagnosed with Autoimmune hepatitis with fibrosis 3-4 in 2023, my liver enzymes had been elevated for many years during and after chemo for breast cancer. In late 2022 I started feeling very fatigued and would fall asleep up to 5 times a day which isn't normal for me because I can only sleep about 4 hours a night, so I sought further testing which led my doctors to finding I had AIH. They started me on Azathioprine but I only lasted 2 weeks on it I was in extreme pain and could barely move. I have Fibromyalgia and in remission for Lupus but AIH has also been attacking my thyroid. I initially declined Prednisone because I didn't need to gain any more weight with this medication. They tried Budesonide and same effects, then Mercaptopurine and I was sick with that too. Finally Cellcept has been good to me and my enzyme numbers have come down near normal levels and I feel mostly better, getting there slowly. Well wishes,take care.

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Replies to "I was diagnosed with Autoimmune hepatitis with fibrosis 3-4 in 2023, my liver enzymes had been..."

Azathioprine did the same for me got my numbers down but everything hurt.. currently on cellcept but still have a rollercoaster with my numbers also on Budesonide when I flare up. Hate taking the meds wishing there was a natural way for this to go away!! Been frustrating for years!!