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← Return to Prolia discontinuation
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I have been on Prolia for 15 years. The good news is that I went from osteoporosis to osteopenia. The bad news is that I have joint pain which is becoming progressively worse. I'm concerned about discontinuing Prolia. I went off of it for three years. There was no significant change for my forearm, nec, or hip. My spine, however, went from a T score of -2.1 to -2.5. Since resuming Prolia in 2019, the spine T is -1.8. I asked my endocrinologist if Prolia was the best prescription for me and she wouldn't consider other options. I'm going to see a new orthopedic doctor soon and will ask for his opinion. I can't tolerate the joint pain any longer. Has anyone else experienced increasing joint pain with Prolia? With other medications for bone loss?
Replies to "I have been on Prolia for 15 years. The good news is that I went from..."
@janetroberson1
Hi Jane,
I have only had 3 Prolia shots starting last year, but want to discontinue them since I've had bad pain in both legs since April. I can hardly stand on them in the morning and started taking Lyrica for the pain. It helps some, but need to get off of the Lyrica. My daughter says pain isn't from the Prolia shots, but I can't get any relief from the pain. My hip is also starting to bother me more and I think I will need a replacement before long. Sounds like I have to take some other meds if I get off the Prolia. I was hoping I could just stop the shots. When I first saw this doctor, he said I couldn't take the other pills because of my thyroid and kidney problems. We'll see when I see him next time. He's referring me back to my pain management doctor for additional shots in my back since he reviewed my dexascan. Wish I could just get off of it and not take any additional meds. He said something about getting an IV medicine at the hospital next year. We'll see what happens. Just need something to get rid of this leg and hip pain!
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@janetroberson1 That is amazing that you lost only a small amount of bone density after stopping Prolia. How long had you been on it before you stopped?
Sorry I've not taken Prolia and have not kept up on it's possible side effects like joint pain, so I cannot offer any info on that.