Connect
← Return to HCM-ers: Introduce yourself or just say hi
Discussion
HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 28 11:57am | Replies (877)Comment receiving replies
Welcome to Connect, @ajand.
I’m tagging @archer @rrowner2 @falconfly as they’ve shared their experiences about medications in this discussion:
– MEDS FOR HCM - DOSAGE https://connect.mayoclinic.org/discussion/meds-for-hcm-dosage/
I also thought you might be interested in reading about a new drug trial which has shown promising results for HCM/HOCM patients:
– Mavacamten Treatment for Obstructive Hypertrophic Cardiomyopathy: A Clinical Trial.
– https://www.biospace.com/article/clinical-trial-results-from-myokardia-s-phase-2-pioneer-hcm-study-of-mavacamten-published-in-the-annals-of-internal-medicine/
Connect’s Alumna Mentor, @cynaburst had mentioned that, "Losartan is not a medication that is commonly used in HCM.” May I ask if you are seeing an HCM specialist?
Replies to "Welcome to Connect, @ajand. I’m tagging @archer @rrowner2 @falconfly as they’ve shared their experiences about medications..."
My physician is a cardiologist. Not sure if he is a HCM specialist. The Losartan was prescribed for hypertension, which had been determined as the likely cause of my cardiomyopathy. The metoprolol alone had not sufficiently controlled my blood pressure. Two years after taking Losartan, my blood pressure began to rise again. A person on this blog suggested adding supplements in lieu of increasing my Losartan dosage. The one which has helped a great deal is Hawthorn Berry. In my case, it has been of enormous help.
Connect
My first cardiology appointment is Thursday so I expect they will change my medication at that time.