Cold feet due to neuropathy - need help

Posted by napa @napa, Feb 9, 2020

Hello, I have extremely cold feet due to my neuropathy. The doctors cannot help. Any suggestions or help? Thank you!

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Late comment but I too have started to suffer from cold feet/burning feet. But this didn’t start until after my GP upped my dosage of amlodipine from 5mg to 10mg. After changing to 10mg about 3wks later I started having these issues. And still currently dealing with it, it comes and goes. I’ve since changed BP meds but it still happens not daily but at lease a few times a week…. Any resolutions for anyone?

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@renicej

Late comment but I too have started to suffer from cold feet/burning feet. But this didn’t start until after my GP upped my dosage of amlodipine from 5mg to 10mg. After changing to 10mg about 3wks later I started having these issues. And still currently dealing with it, it comes and goes. I’ve since changed BP meds but it still happens not daily but at lease a few times a week…. Any resolutions for anyone?

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Welcome @renicej, Unfortunately there are a lot of medications that can cause neuropathy symptoms as a side effect. The Foundation for Peripheral Neuropathy has a fairly comprehensive list of medications associated with neuropathy side effects - https://www.foundationforpn.org/wp-content/uploads/2016/10/Medications-that-Can-Cause-Peripheral-Neuropathy.pdf.

Have you done any research on the side effects of your new BP meds?

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@renicej

Late comment but I too have started to suffer from cold feet/burning feet. But this didn’t start until after my GP upped my dosage of amlodipine from 5mg to 10mg. After changing to 10mg about 3wks later I started having these issues. And still currently dealing with it, it comes and goes. I’ve since changed BP meds but it still happens not daily but at lease a few times a week…. Any resolutions for anyone?

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My ankles swelled everyday when I started taking 20mg of Amlodipine, so I stopped it.

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I found I had very cold feet for about 6 months - I bought some electric socks and used them daily around the house when my feet were cold for months... now I don't find it happens anymore. I do still get burning sometimes but I don't find that as uncomfortable

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@kathyv66

I found I had very cold feet for about 6 months - I bought some electric socks and used them daily around the house when my feet were cold for months... now I don't find it happens anymore. I do still get burning sometimes but I don't find that as uncomfortable

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Hi, @kathyv66 ,
That is interesting, and it sounds like those socks are a blessing. Was wearing them compatible with shoes or did you find you could walk safely with just the socks?
I use a foot-sized electric heating pad every night of the year -- otherwise the pain and frigidness of my feet would keep me up all night. In the morning I wake up with no foot pain at all, but during the daytime it comes and goes.
Thank you for sharing something that you find helpful!
~Barb

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I ise a heating pad on my feet every night.
If I don't I can't sleep.

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@bjk3

Hi, @kathyv66 ,
That is interesting, and it sounds like those socks are a blessing. Was wearing them compatible with shoes or did you find you could walk safely with just the socks?
I use a foot-sized electric heating pad every night of the year -- otherwise the pain and frigidness of my feet would keep me up all night. In the morning I wake up with no foot pain at all, but during the daytime it comes and goes.
Thank you for sharing something that you find helpful!
~Barb

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I wore them without shoes, you could put shoes over them - mine are a bit thick.

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I wear a pair of socks I buy from Walmart. I can’t stand tight socks. My feet freeze and these are really soft and keep my feet warm.. A friend of mine with ms told me about them. They sell out really fast I bought about 10 pair so know I own over 20 and their are about 6 to a group. I also bought some fuzzy ones.They are called Muk Luks. Here in Dallas I had to go to over six Walmart.. I used a heating pad on low my foot blistered caused an ulcer almost lost my toes. A big problem with neuropathy and no I am not diabetic mine is autoimmune.

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@artemis1886

I wear a pair of socks I buy from Walmart. I can’t stand tight socks. My feet freeze and these are really soft and keep my feet warm.. A friend of mine with ms told me about them. They sell out really fast I bought about 10 pair so know I own over 20 and their are about 6 to a group. I also bought some fuzzy ones.They are called Muk Luks. Here in Dallas I had to go to over six Walmart.. I used a heating pad on low my foot blistered caused an ulcer almost lost my toes. A big problem with neuropathy and no I am not diabetic mine is autoimmune.

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How do you know your neuropathy is autoimmune? I ask because I had chemo and an autoimmune disease in parallel - so not sure which one caused my neuropathy.

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1. I am not diabetic
2. All my autoimmune markers are high C3, ESR, ANA
plus other markers in my blood work
3. I am positive for Sjogrens, SLE and RA all autoimmune
4. It showed on my SFN biopsy on the nerves
5. I have had it since 2002 when I got mrsa bacterial
spinal meningitis is when I first tested positive
6. I have been on IVIG since age 10 is when my autoimmune markers were first discovered to be high
Currently on IVIG helps with my balance and dizziness. along with foot pain I can’t no longer feel my legs or hands.
7. Autoimmune showed up also on lip biopsy. The glands between the lip and teeth.
8. My hips have also been biopsied because they are constantly inflamed after my hips have replacements. 4 left hip replacements actebulum fracture and right hip caused by osteoporosis and AVN ( lack of blood flow to the bones caused by neuropathy.)
9. EMG/ NCT showed positive for autoimmune
10. I also have a list of everything blood wise to be tested for for people with neuropathy from a research neurologist. Had problems with that some of the test the doctors had no idea what the test were but we got them done.

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