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What are most common side effects when starting HU (Hydroxyurea)?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (69)Comment receiving replies
Yea for some reason they never tell you that? I found out also by reading about it after prescribed. Sucks I’ll be on it for life with having PV. I’m two years in this month and it’s under control but I hate the meds! Jakafi is super Expensive and the only other choice for PV patients. It also can cause organ damage, but they monitor with labs. I’m glad you tolerated it well but sad that you developed something else now from the meds. Blood illnesses suck!
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I wasn't told either - just that it was "medicine" - but since I had not been told it was a blood cancer, no surprise. I also did my own research online (Mayo and Cleveland Clinic) and found out what I had was a blood cancer, why I was called a high risk and what "medicine" I would be given. When the box arrive, it was labeled "HAZMAT - ground transportation only!" If I hadn't researched, I probably would have fainted! Fortunately, I am now with a very transparent doctor, very collaborative so far. Everyone's comments are SO helpful. Nice to have a place where everyone "gets it!"