Mine was found incidentally on a coronary CT, then pet scan showed malignancy in RML, along with multiple tumors/tumorlets in multiple lobes. MSK biopsy revealed carcinoid tumor. RML lobectomy revealed it was “typical “ carcinoid/NET, and that I had DIPNECH. Shortness of breath on exertion was my main symptom, which still exists. Prior to dx, I had recurring chest infections, tested positive for allergies, and now take allergy shots. It helps my main symptom of mucous in sinuses, but I’m regularly clearing it from my chest and throat. Now I know why. I have not yet needed any of the treatment shots, after a year post lobectomy. Still get scanned and meet with my MSK doctor twice a year.