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@sheim

I do not have a pacemaker or defibrillator and am hoping this will prevent me from having to have one. Am also hoping I can get off the Disopyramide. That stuff is AWFUL. I've read there is a Rx to help with the dry mouth, nose, eyes but ....who wants to add yet another medicine when I'm anti Rx in the first place. I'm normally even anti doctors but when a 2nd cardiologist read all my reports and said he agreed I decided maybe mine knows what he's talking about ....haha. The second guy also said it looks like it's possible I'll be referred for a sepal myectomy and if I were his patient I'd ONLY be sent to Mayo. When I had a follow up with my doctor and he suggested the surgery and also said Mayo I did feel better. He even said there is a doctor in Boise who said he would do it but he didn't recommend it. Then told me the stats. WOW! I had no idea how few of these are done and totally understand now why places like Mayo and Cleveland are the places to go.

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Replies to "I do not have a pacemaker or defibrillator and am hoping this will prevent me from..."

The Septal Myectomy was very effective for me at the Mayo. The pacemaker and defibrillator is for a different component of this heart disease, which is an electrical component. The myocytes in the heart Are configured differently than in a normal heart. It is called “ myocyte disarray”. It can lead irrregular and potentially lethal heart rhythms like ventricular tachycardia and ventricular fibrillation. This of course can lead to sudden-death. You may want to talk to your second cardiologist about a pacemaker and defibrillator. Good luck.

Myocardial disarray