Even tho I've joined and asked a question or two, I've not introduced myself. I'm Sherry, live in Idaho and scheduled for a Mayo trip and surgery the end of June. I have HOCM and was only diagnosed in Feb. However I think it's because I happened to have been seen by a dr who knew what he was doing and seeing. For several years I've had symptoms ...shortness of breath, palpitations, odd EKG's and known heart murmors. Even told I have a thickening heart muscle. but nothing was mentioned about HOCM. As the time gets closer my concerns get bigger and I wonder if I'm alone in that thinking. Other than walking makes me wore out it doesn't stop me; I just need to rest a minute or so... so I wonder do I REALLY need this. I also think, what if I get there, go through the expense (flight, hotel, car rental) and the doctors there say ..."naw you don't really need this" My doctor here says after reviewing what he sends them they aren't going to waste their time or mine in having me come if they don't agree with him. I guess I could say if no surgery is needed I got a forced vacation. Positive thinking right? haha. I do tend to get myself worked up in worry so I'm thankful I can voice my concerns on here.