Immunohistochemistry (IHC) results: Scared I may have lymphoma

Posted by mwtexas @mwtexas, Dec 9, 2024

I recently got my lymph node biopsy results back and I know they ran a whole lymphoma panel as the stains came back positive for some type of NHL. The pathologist wrote "clinical correlation necessary" without coming to a definitive diagnosis. Has anyone had this experience before, and if so, does this mean more testing will be required, or that my doctor needs to base the diagnosis on what is going on with me clinically? As a side note, I am being worked up for a large abdominal mass with systemic lymphoma symptoms. I am not scared of what my diagnosis could be, but I just want answers at this point as this has been a long journey.

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koyemah | @koyemah | 5 days ago

Have you started treatment by now ?

mwtexas | @mwtexas | 5 days ago

In reply to @koyemah "Have you started treatment by now ?" + (show)

No, my doctors can't come to any conclusion so I'm going to an NCI cancer center for a second opinion. My WBC and platelets are dropping now and I don't feel good at all.

koyemah | @koyemah | 5 days ago

In reply to @mwtexas "No, my doctors can't come to any conclusion so I'm going to an NCI cancer center..." + (show)

After the pathologist your Primary DR should refer you to an oncologist but yes search for a DR that will refer you

mwtexas | @mwtexas | 5 days ago

In reply to @koyemah "After the pathologist your Primary DR should refer you to an oncologist but yes search for..." + (show)

I see an oncologist/hematologist next Tuesday so hopefully I'll make some progress.

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